Good morning friends,
It is with a bit of a
heavy heart that I share with you some of the news we've received in the
last few weeks. I know that some of you have been patiently, or not so
patiently waiting and asking about Evie since we left SickKids a few
weeks ago, and now that we've had a bit of time, we can give you a few
more puzzle pieces.
I say it that way because we
don't have all the answers. I like to email when I can give you a good
idea, and though I do have more information, it's still just pieces.
Before Evie was released from SickKids post op, she had her follow up
MRI. The MRI served two purposes at that date: it ensured the Shunt
Revision surgery she had was successful - it was - and it was her 3
month follow up. As mentioned in a previous email, her last scan had
shown a change but it was unclear and considered inconclusive results
(they weren't sure if the change was a technical flaw or tumour
activity). This scan however confirmed that there has been tumour activity - her tumour has grown.
With
tumour growth comes intervention. In the last few weeks we have met
with the Oncology team a few times, and are having conversations about
what the next steps are. Evie will begin chemotherapy in the coming
weeks. At this point we're not sure what the treatment will be (which
means we don't have details about frequency or duration), we just know
that her team is exploring options. As far as we can tell, this is a
good thing. We want them to look into as many options as possible, do
their homework. Evie has been through four previous protocols, and if
the results we want aren't coming from those, it's time to dig a little
deeper. This little one's a fighter, and she'll be ready to roar.
The excitement of an in patient stay bumped up all other follow ups
too, so we're being well looked after to make sure Evie stays in
check. In all honesty, Evie hasn't felt great all the time, with sudden
headache, occasionally vomiting, and lack of appetite. Everything is
written down and reported (I even bought a new notebook specifically for
all the current happenings so I can give her team detailed
information.....not that they asked.....talk about Type A). At the same
time though, she is feeling well a lot of the time too: she's back at
school, having playdates and keeping us laughing with her notoriously
horrible knock knock jokes.
So in the spirit of
keeping this one brief...I'm going to remind everyone that spring is
coming and that means Meagan's Walk. After a very successful 1st year,
another pool tournament is in the works, April 25th (https://www.facebook.com/
Until next time, thank you for all the love.
Paul & Kristine
Isabelle and Evie
"and though she be but little, she is fierce"
