Well.....no
news is good news, gang! Since my last update, Evie has had follow ups
with everyone, and she is right on track. Her most recent scan was in
March (MRI #14) and it looked basically identical to the previous
one....which means her tumour is stable. So, for now, it's more of the
same: daily meds at home, routine follow ups every few months, port
flushes....life off treatment :)
Now, just because we're not schlepping back and
forth to SickKids doesn't mean we've been any less busy! The past few
months have flown by it seems! In February we officially registered
Evie for JK next fall. In March she began one on one swimming lessons
(yipee....I no longer have to get in the pool!), and gymnastics (parent
and tot.....so this one I do participate in). Both activities are going
well. Evie loves the pool, and she is actually getting everything out
of gymnastics that I had hoped for: it is increasing her balance by
challenging her on the trampoline, and it is building her coordination
and strength on the bars and beam.
April has come and gone, which means our little girl grew another
year older: Evie turned 4 on the 13th. She had (in my oppinion) an
amazing birthday weekend, celebrated with an Arts and Crafts party with
her friends (read: paint, markers, crayons, cake, feathers, beads,
balloons, glue, glitter + 10 kids in my house...), lots of food and
family. Her big sister even chose a special birthday present for her:
Evie got her own American Girl doll that looks just like her.....and let
me tell you guys for those that don't know, this is a big deal....haha. It was a good weekend, I made sure to stop and take it all in...for these moments just continue to speed by.
Meagan's Walk is this Saturday, and Evie's Team is doing a great job! I'd again like to invite you to join us or donate -
we'd be happy to have you with us! I'll be emailing some info to our
team this Thursday evening....so to all those joining us, keep an eye
out!
A bit of an update for MW fundraising: The
charity pool tournament and raffle organized by my cousin Jenn was a
huge success. They raised over $2,400 for the team and far exceeded
their own expectations! The hall was busy, the prizes were awesome, and
above all else there was an overwhelming vibe of caring, kindness and
support from all those we met. Evie, not surprisingly, made her way
around the hall and spoke with just about anyone who would listen! Evie
is just old enough to now really understand things about her treatment
and her diagnosis, but one thing we feel that she has always known and
felt is that she does in fact have a whole village around her. I may be
jumping the gun, or being presumptuous....but mark your calendars
people...this event will likely be back next year!
That's it for now....Happy Cinco de Mayo - now time for a cerveza ;)
Kristine
